Tuesday, January 12, 2010

January 12, 2010


Oh, how time flies by when you're happy and having fun. Things are smooth sailing. I feel guilty about not posting our thanksgiving and praises in the past few months; however, we've really been cherishing the moments. We feel that we are "settled." Carter and Chloe are adjusted to adding their sister to the family. We think that we are in a good routine and rhythm of life. Lydia is here on my lap as I type. She's growing bigger, stronger, and more playful than ever.

I think we're still in the "just live and listen to God" stage. Perhaps I could have poured over more Scripture, books and aricles about miracles and lessons about what we just went through. We've learned a lot but I crave more insight. We still feel like we're in the early steps of processing 2009. So much happened with Kyle's dad passing away, high risk, pregnancy, hospital, and Kyle's car crash. Even during it all, we had the true peace of God and could see Him working each day.



Monday, November 2, 2009

November 2, 2009

Lydia is so interactive now! She is cooing and making all kinds of sounds with her mouth. Her favorite thing to do is to get up on my shins while I'm on my back on the floor and I bounce her gently while smiling and talking with each other. She grins from ear to ear and laughs. It brings such joy to me to see her so alert and happy. She is able to track objects with her eyes in all directions and can definitely hear well. Tummy time is not her favorite but she will do it with fun toys or a mirror in front of her. She loves the fish tank so she sometimes lays on our chest and watches the fish that way. Lydia really prefers to sit up with our help and she likes to now face out when we hold her. She is getting so big! We are wondering if she will last much longer in her car seat. She's only 3 months! All of the developmental stuff that we sometimes take for granted just seems like such a huge accomplishment for her. We are thrilled for her physical accomplishments, but more than that, we are estatic about her social interactions and sweet spirit. Thank you, Lord!

Thursday, October 22, 2009

October 22, 2009

Below is an article written for our women's ministry newsletter in June 2009.


The Strength Inside of Me

The past ten weeks in the Sims’ household have been unpredictable and emotional. It is difficult to know whether to write in the past or the present tense. God is still fresh at work in our family circumstances but God has made it clear that we are supposed to be sharing this story for His glory. The strength inside of me is only strong when I allow Christ to shape my attitude.

Ten weeks ago Kyle, my husband, and I went to my routine 20 week prenatal sonogram. We were excited to find out if we were having a boy or a girl. We did not expect to find out that our baby girl was in great danger and we would have to wait the weekend to find out what was wrong. We knew that God had blessed us with our third child and we had already placed her in His hands. Now it was time to trust Him in a whole new way. Proverbs 16:9 says, “In his heart a man plans his course but the Lord determines his steps.”
The diagnosis is that she has CCAM with hydrops fetalis, which means that our baby girl has a mass on her lung taking up two-thirds of her chest cavity, pushing her heart aside, and causing swelling all over her body. Her prognosis is that she has a 5-10% chance of survival. It is an extremely rare and random condition and there is nothing I can do to help. Surgery after birth is the only treatment.

It is a struggle some days to keep from having an attitude of worry or slip into the swirling questions of “what if’s.” 2 Corinthians 10:5 speaks of “taking captive every thought to make it obedient to Christ.” My three year old daughter quotes Psalm 56:3, “When I am afraid, I will trust in you (God).” My four year old son quoted the words from the movie Facing the Giants when talking about the will of God. He said, “If we win, we’ll praise Him. If we lose, we’ll praise Him.” They are learning life lessons along with us.

After visiting the Neonatal Intensive Care Unit at Children’s Mercy and talking with the surgeons, I finally hit an emotional low. I knew that it was okay to grieve and that I also wasn’t in despair. “Consider it all joy, my brethren, when you encounter various trials, knowing that the testing of your faith produces endurance. And let endurance have its perfect result, so that you may be perfect and complete, lacking in nothing.” James 1:2-4. We know that this story is not finished yet.

After accepting and understanding our baby’s condition, we had another adjustment in the family. Kyle’s parents came to live with us in our basement as his father is on hospice. It is the best place for them and our family right now.

We have a lot of uncertainty in our life and we have to rest in the fact that God is in control. We feel peace and comfort that can only come from the Lord. We know that God is so faithful and that His Word is truth.
Sharing our story has been a blessing. Hundreds of people have been praying for our baby and our family. Sometimes the greatest encouragement has been hearing that someone doesn’t know what to say but that they are praying.

The next appointment was quite interesting. The doctor could not measure the CCAM and the swelling was gone. She said that we were looking at a new baby. The nurse said, “I don’t know if you’re praying or what, but keep it up.” We were amazed but not surprised. It has been incredible being able to rejoice with those who have lifted us up in prayer.

Please keep praying for Lydia Joy Sims. She has 9 more weeks to heal in the womb and possibly still a surgery in her future. We are all His precious children and He knows the big picture. Trusting in Him is the only way to live in freedom.

Wednesday, October 21, 2009

October 21, 2009

LYDIA IS OFFICIALLY OFF OXYGEN!!! I'm just watching the monitor today and tonight. Right now she's sating at 100% for the past 10 minutes. Her lung has completely filled in and the doctor can't hear any difference between her two lungs! I keep saying the same thing, but, "Praise the Lord."

This is a big day of firsts. She has been playing and batting at toys and has also rolled over three times! Fun stuff and such a sweetie pie. I actually call her my sugar bear. The nurses gave her a blankie bear in the NICU called a sugar bear and I just thought it could be a cute nickname for her.

Lydia has been getting a lot of attention in the email, facebook, blog world so I guess I'd better create a blog for all three children. This is an equal opportunity household. :)

Tuesday, October 20, 2009

October 20, 2009

Lydia had the doctor's orders to start weaning off of oxygen. Praise the Lord!!! We are so excited for this short process. The oximiter will be delivered and we will be trained tomorrow morning. All we have to do is take her off of her oxygen and monitor her for 10 minutes every 2 hours and then throughout the night. Two days of having a sat level of 93 or greater means that she can remain off oxygen forever. Wow!

Sunday, October 18, 2009

October 17, 2009

A few things to remember...

1. Have faith no matter the circumstances.

2. Appreciate and cherish family and close friends.

3. Letting others serve me is humbling and it gives me a stronger desire to pay it forward out of love.

Saturday, October 17, 2009

October 17, 2009


Oxygen. ..It's so great to have yet so inconvenient when you don't think you need it. There have been many times we've caught Lydia with her oxygen being used as glasses or a necklace and she's been happy as ever. There have also been some times that we failed to turn a knob or it has come detatched from a tank and she has been fine then as well. This must mean that she's healthy and can manage without extra oxygen. We'll see what the doctor says Monday.

Lydia is also supposed to be on an apnea monitor full time. She does not have apnea but it is standard procedure to have a monitor with oxygen. It tells us if her heart rate or breathing rate goes too high or low. It sets off an extremely loud siren when that happens or whenever the belt moves on her. It went off presurgery a few times when she was home for a day but now she's great. Right now we see it as an extra two cords and something that needs to be hauled around on my shoulder during the day. Needless to say we don't always use it as much as we are told to--rebels. It is absolutely wonderful to have at NIGHT--peace of mind. During the day, I'm either with her or checking on her often. However, I think the nurses and doctors would approve of our use of the equipment.

THIS MONDAY is her appointment with Special Care Clinic at Children's Mercy. They will run tests and labs to see if she can come off of her equipment. If she is able, they said that we can still have a tank of oxygen and the monitor for awhile in case we need it. Oh, I don't know what we'll do with all of the freedom. We can go from room to room and upstairs/downstairs with ease and we can say goodbye to the beautiful silver and green tanks all over our home. Can you tell I'm getting my hopes up? I just can't see any reason she couldn't come off of it. Praise God for her recovery! Forgive my complaining. I do have some level of guilt for complaining about this. My goals and perspective has shifted so much--life/death matters to convenience. Oh well. At least this blog helped me vent. Please pray that she (we) can be free on Monday!