Wednesday, April 15, 2009 7:20 PM
Thank you for all of the continued prayers and support. Several people have asked for our baby's name so they can pray for her by name. Her name is Lydia Joy Sims. We had our long sonogram and appointment with the specialist today. We learned that her lung mass is the same size relative to the chest size as before. The swelling all over the baby's body is reduced. They were able to confirm that she is definitely a girl. Overall the sonogram gave us some positive news.
Our next step is to meet with the surgeons and pediatricians at Children's Mercy Hospital and tour and meet the neonatal doctors at St. Luke's. We'll continue to have bi-weekly appointments at St. Luke's. The plan is that we will deliver at St. Luke's. Once she is stabilized and on a ventilator, transfer her to Children's Mercy. The Children's Mercy surgical team will can assess when to operate and how much of the lung tissue needs to be remove(the part that makes the CCAM).
Lydia is, as always, in God's hands. We are gaining knowledge and starting to plan but ultimately we are just along for the ride. This morning I visualized a big puzzle. God knows the final picture and there are a few pieces that we are trying to figure out which way they will turn and fit together. We're just trying not to create our own pieces to jam in there in the midst of His perfect masterpiece.
That's what's going on here with our family. While you are praying, please lift up Kyle's dad, Gary and the rest of the Sims' family. His dad's cancer is now in his lungs and was put on hospice yesterday.
Again, thank you for your love, concern and support. Your prayers are without a doubt not only getting us through uncertain times but providing us with God's peace and joy.
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